Beyond the Pale review ✓ 103



10 thoughts on “Beyond the Pale

  1. says:

    I am fairly conflicted about this book and I have mostly myself to blame for that I did not really read the descr

  2. says:

    This has a massive personal connection for me Will chat about it in my August wrap up A wonderful read

  3. says:

    I'm giving this book a 35 rating which seems a little harsh in my head but I think it makes sense This is uite a short book and it is a non fiction all about Albinism folklore and the way Albinism is treated and seen worldwide When E

  4. says:

    In December 2010 the author’s first child Sadie was born with white hair It took weeks to confirm that Sadie had albinism a genetic condition associated with extreme light sensitivity and poor eyesight A Canadian folklor

  5. says:

    A wonderful read exploring the many cultural beliefs and understandings surrounding albinism This is a non fiction book focusing on a subject in which Emily Uruhart has poured her heart and soul Having given birth to her daughter Sadie Emily uickly discovered there was something that set her daughter apart from the rest she had albinism Being a passionate folklorist Emily took it upon herself to discover everything there is to know about al

  6. says:

    I have been dithering on posting these notes I read books and then I say what I think about them The notes are mostly for myself but the GR mod

  7. says:

    Given that I am Canadian it is ironic that I learned about this extremely well written non fiction Canadian book from the very British Jen Campbell author poet and Booktuber extraordinaire Thank you JenUruhart's moving and informative book recounts her adjustment after her first child a daughter is born with alb

  8. says:

    Read this review and on my blogI feel like this year is the happiest I've felt with my reading habits for the longest time When you step into book blogging it feels as though you must read what everyone else is reading not because anyone els

  9. says:

    Albinism is a rare genetic condition where pigment fails to form in a person's skin hair and eyes Those with albinism suffer from poor vision and sensitivity to the sun often developing skin cancer When Emily Uruhart gave birth to a daughter with albinism in 2010 her life took an unexpected turn Living in Canada Uruhart

  10. says:

    Such an interesting book I'm glad I finally picked it up as I learned so much about albinism and how it affects people around the world I loved how Uruhart tied her research into folklore it really does show how fiction and myths can help us understand something that is very realI'm reviewing this book for the G

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characters µ eBook or Kindle ePUB ´ Emily Urquhart

Gruesome attacks on people with albinism in Tanzania rooted in witchcraft she feels compelled to travel to East Africa her sun shy toddler in tow in an effort to understand these human rights violations Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present While navigating new territory as a first time parent of a child with a disability Emily embarks on a three year journey across North America and Africa to discover how we explain human differences not through scientific facts or statistics but through a system of cultural beliefs Part parenting memoir part cultural critiue and part travelogue Beyond the Pale as the title suggests takes the reader into dark and unknown territory in the search for enlightenment Given that I am Canadian it is ironic that I learned about this extremely well written non fiction Canadian book from the very British Jen Campbell author poet and Booktuber extraordinaire Thank you JenUruhart s moving and informative book recounts her adjustment after her first child a daughter is born with albinism The book is part memoir part travelogue part journalistic investigation and part folkloric study I highly recommend it Uruhart seems to have inherited than a little of her mother s Jane Uruhart talent for fine writing

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Beyond the Pale

The story begins on St Stephen's Day in St John's Newfoundland when the author gives birth to a baby girl named Sadie Jane who has a shock of snow white hair News of the child's icy locks travels across the hospital and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet The maternity floor janitor however feels something is amiss Her eyes wide incredulous and panicky the janitor asks Is she an albino The idea is Beyond the eBook #8608 immediately dismissed but after three months of medical testing Sadie is diagnosed with albinism a rare genetic condition where pigment fails to form in the skin hair and eyes She is visually impaired and faces a lifetime avoiding the sun She will always have the otherworldly appe I m giving this book a 35 rating which seems a little harsh in my head but I think it makes sense This is uite a short book and it is a non fiction all about Albinism folklore and the way Albinism is treated and seen worldwide When Emily the author had her baby Sadie she was born with Albinism This is a genetic disease that affects people when two genes are mixed in the baby When Sadie was born Emily had no knowledge of her family history with Albinism and so she started trying to find out as much as she could for both herself and Sadie so she could help and explain things to her when she got olderWhat I liked about this is that it s brutal and raw and not afraid to be Some parts of the world Albinism and people with the condition are looked down upon as less than human zero zero in Tanzania These places are dangerous places for people with this condition to live becuase witch doctors and people believe that the bones and body parts of Albinism sufferers is potent with healing properties Many young people with the condition are brutally attacked and sometimes murdered by people trying to steal their body parts This is a horrific reality What I found a little less engrossing was the fairytale element I had hoped we d see a lot of that than we did becuase of how it was pitched but it seemed to me that we really didn t get to see very much at all Whilst I enjoyed the looking at the nasty side and the good side of conventions in Canada where they live I wish the folklore and fairytale side had been brought in Maybe that s just me becuase I enjoy that sort of thing but I definitely wouldn t have wanted any other part missed out to put that in so I guess what I m really saying is I wish this was longer and could have gone in depthI learned a lot from this story and I am very very glad I read it It s both lovely terrifying and enlightening and a story I really enjoyed but that they lived I would certainly read by this author and I enjoyed the experience of this one I just wish there had been 35s from me

characters µ eBook or Kindle ePUB ´ Emily Urquhart

Arance that drew the awestruck hospital staff to her sideA journalist and folklore scholar accustomed to processing the world through other people's stories Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide What she finds on her journey vacillates between beauty and darkness She discovers that Noah's birth story is believed to be the first record of a baby born with albinism and that the Kuna people in Panama revere members of their society with albinism seeing them as defenders of the moon in the night sky She attends a gathering of people with albinism in St Louis and interviews geneticists social scientists novelists and folklorists in Canada England and the US But when she uncovers information about In December 2010 the author s first child Sadie was born with white hair It took weeks to confirm that Sadie had albinism a genetic condition associated with extreme light sensitivity and poor eyesight A Canadian folklorist Uruhart is well placed to trace the legends that have arisen about albinos through time and across the world ranging from the Dead Sea Scroll story of Noah being born with blinding white skin and hair to the enduring superstition that accounts for African albinos being maimed or killed to use their body parts in folk medicine She attends a NOAH America s National Organization for Albinism and Hypopigmentation conference discovers potential evidence of a family history of albinism and even makes a pilgrimage to Tanzania to meet some victims It s all written up in as engaging present tense narrative of coming to terms with disability to start with Uruhart is annoyed at people reassuring her it could be worse but by the end she s ever so slightly disappointed to learn that her second child a boy will not be an albino like his sisterEmily Uruhart is the daughter of novelist Jane Uruhart I was delighted to win a copy in a Goodreads giveaway